patsientidesse
Patsientidesse is a term used in health humanities and patient-centered discussions to describe a framework that brings patients into the core of care design and research. It denotes an approach where patient experience and voice are formal components of decision-making, governance, and evaluation, rather than incidental feedback.
Etymology and scope: The word combines patsient, the root for patient in several European languages, with a
Origins and usage: The term has appeared in Nordic and Baltic health policy and medical sociology literature
Core concept: Patsientidesse emphasizes patient agency, co-production of care, and participatory research. Its practical elements include
Criticism and challenges: Critics argue that the term can be vague or tokenistic if not backed by
See also: patient-centered care; patient engagement; participatory medicine; co-design; patient-reported outcome measures.