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kidneyserve

Kidneyserve is a health information technology platform designed to support nephrology care across the continuum of kidney disease. It aims to streamline data management, care coordination, and clinical decision support for chronic kidney disease (CKD), dialysis services, and kidney transplantation programs. The platform is used by clinics, dialysis centers, hospitals, and transplant centers to integrate patient data from laboratories, imaging, medications, and clinical notes, enabling more consistent care and research opportunities.

Core capabilities include:

- Registry and cohort management for CKD stages, dialysis patients, and transplant recipients

- Data integration and longitudinal lab trend visualization across vendors

- Dialysis scheduling, modality tracking, and vascular access monitoring

- Transplant waitlist and donor information management

- Patient portal for symptom reporting, education, and engagement

- Alerts, reminders, and decision-support rules for abnormal labs or missed appointments

- Analytics and reporting for outcomes, quality measures, and research

Architecture and interoperability:

The system is modular and cloud-native, designed for interoperability with electronic health records using HL7 FHIR

History and governance:

Development began in the late 2010s through a collaboration of nephrologists, informatics professionals, and healthcare organizations.

Adoption and impact:

Users report improved data quality, streamlined scheduling, and enhanced patient engagement, while challenges include integration complexity

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standards
and
standard
laboratory
interfaces.
It
employs
role-based
access
control,
audit
logging,
and
data
encryption
at
rest
and
in
transit,
with
privacy
compliance
aligned
to
applicable
regulations
in
the
operating
jurisdiction.
The
project
has
expanded
features
and
integrations
through
community
contributions
and
is
maintained
by
a
nonprofit
consortium
that
emphasizes
an
open
governance
model.
with
diverse
EHR
systems
and
the
need
for
staff
training
and
governance
for
data
sharing.