Kidneyserve

Kidneyserve is a health information technology platform designed to support nephrology care across the continuum of kidney disease. It aims to streamline data management, care coordination, and clinical decision support for chronic kidney disease (CKD), dialysis services, and kidney transplantation programs. The platform is used by clinics, dialysis centers, hospitals, and transplant centers to integrate patient data from laboratories, imaging, medications, and clinical notes, enabling more consistent care and research opportunities.

Core capabilities include:

- Registry and cohort management for CKD stages, dialysis patients, and transplant recipients

- Data integration and longitudinal lab trend visualization across vendors

- Dialysis scheduling, modality tracking, and vascular access monitoring

- Transplant waitlist and donor information management

- Patient portal for symptom reporting, education, and engagement

- Alerts, reminders, and decision-support rules for abnormal labs or missed appointments

- Analytics and reporting for outcomes, quality measures, and research

Architecture and interoperability:

The system is modular and cloud-native, designed for interoperability with electronic health records using HL7 FHIR standards and standard laboratory interfaces. It employs role-based access control, audit logging, and data encryption at rest and in transit, with privacy compliance aligned to applicable regulations in the operating jurisdiction.

History and governance:

Development began in the late 2010s through a collaboration of nephrologists, informatics professionals, and healthcare organizations. The project has expanded features and integrations through community contributions and is maintained by a nonprofit consortium that emphasizes an open governance model.

Adoption and impact:

Users report improved data quality, streamlined scheduling, and enhanced patient engagement, while challenges include integration complexity with diverse EHR systems and the need for staff training and governance for data sharing.

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