Home

caregiverreported

Caregiverreported refers to information about a patient’s health status, symptoms, functioning, or quality of life that is provided by a caregiver rather than the patient. This approach is commonly used in clinical practice and research when the patient has limited ability to report, such as in children, individuals with cognitive impairment, advanced illness, or severe distress. Caregiverreported data can pertain to symptoms (for example pain or agitation), daily functioning (activities of daily living), behavior, mood, or the overall impact of illness on daily life.

In research, caregiver-reported outcomes are collected using caregiver-reported outcome measures and may complement patient-reported outcomes to

Advantages of caregiverreported information include the ability to capture observations when patients cannot self-report, the provision

See also: patient-reported outcome, proxy reporting, caregiver burden.

provide
a
fuller
picture
of
the
patient
experience.
Caregiver
reports
are
particularly
important
in
populations
where
self-report
is
unreliable
or
impossible,
and
they
are
frequently
used
in
studies
of
dementia,
pediatrics,
palliative
care,
and
chronic
diseases.
Examples
include
scales
for
neuropsychiatric
symptoms,
functional
status,
and
caregiver
burden.
of
insights
into
daily
functioning
and
care
needs,
and
the
potential
to
reflect
real-world
impact
on
families
and
caregiving
routines.
Limitations
include
potential
bias
from
caregiver
stress
or
burnout,
subjective
interpretation,
recall
inaccuracies,
and
variation
in
reporting
due
to
cultural
or
personal
factors.
Methodological
considerations
emphasize
the
use
of
validated
instruments,
clear
time
frames,
caregiver
training,
and
transparent
reporting
of
limitations.