patientrapportering

Patientrapportering is the process by which patients provide information about their health status, symptoms, treatment effects, and experiences of care to clinicians, researchers, or health organizations. It includes patient-reported outcome measures (PROMs), which describe the impact of disease and treatment on daily life, and patient-reported experience measures (PREMs), which reflect patients’ perceptions of aspects of care such as communication, access, safety, and respect.

Data are collected through standardized questionnaires, digital patient portals, mobile apps, telephone interviews, or during clinical encounters. PROMs and PREMs can be collected at defined time points (for example baseline, after treatment, follow-up) and may be integrated with electronic health records to support decision making and outcome monitoring.

Purpose and use include guiding shared decision making, tailoring treatment plans to patient priorities, monitoring effectiveness and safety, benchmarking quality, and informing research and policy. It emphasizes patient-centered care and can uncover problems not captured by clinical measurements.

Challenges include ensuring language and cultural relevance, health literacy, and digital access; protecting privacy and obtaining informed consent; ensuring data validity and interoperability; and minimizing burden on patients and staff. Successful implementation requires governance, clear use of data, clinician training, and alignment with care pathways.

Ethical and regulatory considerations involve data protection laws and transparent communication about how patient-reported data are used, stored, and shared with providers or researchers.