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Hälsodata

Hälsodata is a collective term for datasets that describe health status, health care utilization, and determinants of health at the individual or population level. It encompasses clinical data from electronic health records and hospital information systems, disease and treatment registries, prescription and pharmacy data, laboratory results, imaging, as well as population health surveys and environmental or social determinants.

Sources include hospitals, primary care clinics, national health registries, laboratories, insurance and social security systems, and

Uses of Hälsodata include health services planning, epidemiological research, quality improvement, safety surveillance, evaluation of interventions,

Governance and ethics: under EU GDPR and national data protection laws, Hälsodata handling requires consent where

Challenges: fragmentation across providers, variable data quality, incomplete capture of social determinants, biases, and legal constraints

Opportunities: more accurate disease surveillance, personalized medicine, health inequality assessment, and rapid learning health systems.

research
cohorts.
Data
are
often
linked
using
unique
identifiers,
with
privacy-preserving
methods
when
appropriate.
and
policy
making.
Data
standards
and
interoperability
efforts,
such
as
coding
systems
(ICD,
SNOMED
CT,
LOINC)
and
data
exchange
formats
(HL7
FHIR),
support
integration.
applicable,
deidentification
for
research,
data
access
controls,
and
data
sharing
agreements
overseen
by
ethics
boards
or
data
protection
officers.
on
data
sharing.
Technical
barriers
include
interoperability,
data
harmonization,
and
secure
linkage.