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helsedata

Helsedata is a term used in Scandinavian contexts to refer to data relating to human health collected from healthcare systems, research studies, and public health activities. The term combines the local word for health with data, and is used to describe both individual-level health records and aggregated health statistics.

Helsedata can include electronic health records, health insurance claims, laboratory results, medical imaging, genomics data, patient-reported

It is used to support clinical care, health service planning, epidemiological research, pharmacovigilance, public health surveillance,

Governance and privacy are central concerns. Data stewardship emphasizes consent, de-identification or pseudonymisation, minimization, robust access

Standards and interoperability enable data from different providers to be combined. Common standards include HL7 FHIR

Challenges include privacy risks, fragmentation across providers, uneven data quality, biases that affect research, the risk

See also: health informatics, data protection, public health surveillance.

outcomes,
disease
registries,
biobanks,
and
data
on
environmental
or
social
determinants
that
influence
health.
and
increasingly
to
enable
machine
learning
and
precision
medicine.
controls,
and
transparent
data
sharing
agreements.
In
the
European
Union,
GDPR
provides
a
baseline
for
processing
personal
health
data,
supplemented
by
national
rules
and
sector-specific
regulations
in
many
countries.
for
data
exchange,
ICD-10/11
for
diagnoses,
and
SNOMED
CT
for
clinical
terminology.
of
re-identification,
and
the
regulatory
complexity
of
cross-border
data
sharing.