patientregister
A patientregister, commonly called a patient registry or patient register, is an organized system that collects, stores and maintains standardized information about individuals with specific health conditions, exposures or treatments. It may be disease-specific (for example, cancer or diabetes registries), treatment-based (such as transplant or medication registries), or population-based for public health surveillance.
The primary purposes of a patientregister include monitoring disease incidence and outcomes, supporting clinical research and
Governance and oversight address ethical, legal and technical issues such as informed consent, confidentiality, data security
Common challenges include ensuring data completeness and accuracy, minimizing selection bias, maintaining participant privacy, and securing