CHDfamiljerna

CHDfamiljerna, also known as CHD Families, is a Swedish non-profit organization dedicated to supporting families affected by Congenital Heart Defects (CHD). Founded in 1980, the organization aims to provide information, support, and resources to families dealing with CHD, which are structural abnormalities in the heart that are present at birth.

The organization offers a range of services, including a helpline for emotional support, educational materials about CHD, and information on healthcare services and treatments. CHDfamiljerna also organizes events and workshops to foster a sense of community among families, providing them with opportunities to share experiences and learn from one another.

In addition to its direct support services, CHDfamiljerna advocates for better healthcare and research into CHD. The organization works to raise awareness about CHD and to influence policy decisions that affect families with CHD. Through its advocacy efforts, CHDfamiljerna seeks to improve the quality of life for individuals with CHD and their families.

CHDfamiljerna is a member of the European Congenital Heart Defects Alliance (ECHDA) and collaborates with other organizations and healthcare providers to ensure comprehensive care for individuals with CHD. The organization's work is funded through donations, grants, and membership fees, and it relies on the support of volunteers and staff to deliver its services.