Potilasjärjestö

A potilasjärjestö, translated as a patient organization or patient association, is a non-governmental organization established and run by individuals who have experienced a specific illness or health condition, or by their family members and advocates. The primary goal of these organizations is to support individuals affected by their particular condition and to improve their quality of life.

Patient organizations typically engage in a range of activities. They often provide information and educational resources about the disease, treatment options, and living with the condition. Peer support is a cornerstone of their work, offering a safe space for members to share experiences, coping strategies, and emotional support. Many also advocate for improved healthcare services, access to treatments, and research funding related to their specific illness. They may also work to raise public awareness and reduce stigma associated with certain conditions.

These organizations can vary in size and scope, from small local groups to large national or international networks. Membership is usually open to anyone affected by or interested in the specific health condition. Funding often comes from membership fees, donations, grants, and sometimes government support. The collective voice of patient organizations can be influential in shaping healthcare policy and driving positive change for patients and their families.