Patientupplevd

Patientupplevd is a Swedish term used in health care and research to describe outcomes, experiences, or statuses as reported directly by the patient. It emphasizes the patient's own perspective and differs from clinician-rated assessments. The expression is commonly used as an attributive modifier in phrases such as patientupplevd hälsa (perceived health) and patientupplevd livskvalitet (perceived quality of life).

In practice, patientupplevd is central to the study and use of patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs). These measures capture the patient’s view of how disease, symptoms, or treatments affect daily life, functioning, and well-being. They are increasingly integrated into research, routine clinical care, and health-system quality assessments, complementing objective clinical data.

Measurement of patientupplevd outcomes typically relies on questionnaires and standardized instruments, including generic tools like EQ-5D or SF-36 and disease-specific PROMs. In Sweden and other health systems, PROs inform clinical decision-making, comparative effectiveness research, and economic evaluations, contributing to value-based care and patient-centered decision making.

Challenges include ensuring cultural and linguistic validity, selecting appropriate instruments for specific conditions, achieving high response rates, and addressing missing data. Interpreting meaningful change over time in patientupplevd measures can also be complex, as perceptions may be influenced by adapting to illness, expectations, or context.

Overall, patientupplevd reflects the growing emphasis on incorporating the patient’s voice into health care evaluation, planning, and improvement. See also patient experience, PROMs, and patient-centered care.